Archive for August, 2007

Rainy Charleston

August 31, 2007

Hello My Dear Family and Friends,

Well today is Friday and the 10th day here in the hospital in Charleston, but even though it is raining they threw me out today. Claire, Abigail and myself have arrived at the motel and preparing to have a good evening and then travel home tomorrow.

Why have I been in the hospital? To discover the cause for the plural effusion, now 10 days later they explained to us this morning they still have no answers. The test that was sent to Salt Lake City returned today and it was negative, therefore ruling out the liver and other stomach areas, but leaving nothing but questions.

We have to return to Charleston on Tuesday to see the surgeons to talk about more lung area surgery, we will see.

Kind of tired now, so I will go. Thanks for the prayers, visits, and calls.

We Love You All,
God Bless You,

Pel

August 28, 2007

August 29, 2007

August 28, 2007

Hello everyone,

We are on our 7th day at MUSC and we still do not have any answers. The test that was sent to Salt Lake City has still not come back. The Dr. told us today right now the only explanation he has for the recurrent pleural effusions is cancer, but there is no evidence of cancer in Pelhams case. Once the results are all back, they will make a decision whether or not to do the second pleurodesis. Pelham was able to walk a little ways down the hall today without labored breathing so that’s an accomplishment. Everyday we hope that will be the day for good news. Pelhams father and stepmother was here yesterday and today and Pel was so glad to see them. If anyone has been trying to call him, we discovered today that the ringer on his phone was turned off. So we turned it on and he is in room 1059 at MUSC. He said he would be glad to talk, but if he did not answer, he was either gone for another test or too short of breath to talk. He wants everyone to know how much he appreciates the prayers and concerns. We know several people has come to Charleston to visit and was told he was not here, we are not sure why, but thank goodness they called us on our cell phone and directed to his room. He enjoyed the visits. He is presently on isolation for a hospital acquired infection he tested positive for in Feburary of this year, however, you can still visit as long as you wash your hands good when entering and leaving the room. He is negative now, but has to have 3 negatives before taking him off isolation. I will update you as soon as we know any information. Thanks,

Claire

August 26, 2007

August 27, 2007

August 26, 2007

We are hoping the test results will be back tomorrow and we will know more about how to fix the problem. Pelham is still having some pain, but his spirits are good. His dad and step mom came in today and he was glad to see them. Looks like we will be here another week or so. Thank you all for the prayers coming our way. We know that God is with us and will carry him through this.

Claire

August 24, 2007

August 25, 2007

August 24, 2007

Well Pelham had another thoracentesis today and they got 3300ml. fluid this time. They still are waiting on the results of one specific test , chylomicron, in the fluid to see if it is present. It has to be sent to Salt Lake City, so it will be Monday until it comes back. That will show if the fluid is coming from the liver. The pulmonologist that is his primary Dr. here is Dr. Sahn, a well know physician who is an expert in pleural effusions. He says that out of 80 to 90 years of medical studies, there were only about 5 different causes and not any of those pertain to pelhams case. They are still saying he will need another pleurodesis next week. Hope you all have a great weekend.

Claire

August 22,2007

August 23, 2007

August 22, 2007

Hello everyone, we are still here at MUSC. Pelham had CT scans and ultrasounds today and another diagnostic thoracentesis. The Doctors here say the pleurodesis he had last week was a failure, the fluid is back in his lung and is still leaking into his abdomen and flank area. They have many ideas of what is causing it, but nothing factual yet until the results of the test are back. One theory is that because of the liver transplant itself, a track from the liver to the lung had developed and the fluid around his liver was leaking into his lung and when the pressure built up so much in the lung it began leaking into his abd. Another theory is there may be a clot in a vessel causing the fluid build up. No one know for sure just yet, but the goal is to find out what is causing the fluid to accumulate and fix that. He may need another chest tube, another surgery to repair the tract, but they give us hope the cause will be found. WE appreciate all of you, the doctors back home, Dr. Thompson, Dr. Buice, Dr. Kopp all of them have been wonderful. I’ll keep you updated. Thanks

Claire

Road Trip

August 21, 2007

Hey Folks,

Sorry I have not been on the blog with any updates, but my dear wife has. I did want to in short tell you what’s up and maybe when I get to feeling better I will tell you about this chest tube, bad stuff. I will take a liver transplant over a chest tube anyday.

However we are packing up and headed to Charleston and I will be admitted to MUSC when the next bed comes open. I am having a time with this fluid, not on my lung now but all on my left side.

God Bless You each one,

Love Claire, Abigail, Justin & Pel

August 17, 2007

August 18, 2007

Pelham’s blood test this am revealed improvement in his kidney function, so he was discharged home this afternoon. YAHOO! He is still very short of breath and having pain, but I think he is better, even he does not think so. We have to follow up at MUSC in Charleston in the next couple of weeks. Maybe in a few days he will feel like dropping a line or two on the blog. Thank you all again.

Claire

August 16, 2007

August 17, 2007

Pelham was moved to med surg floor today. He still has the chest tube in place and is having lots of pain. A nephrologist, Dr. Din was called in today because his kidney function is not very good. He thinks maybe it is caused by the antirejection medications he is taking and the massive fluid volume depletion from the numerous thoracentesis he has experienced the last few weeks. Hopefully the chest tube will be removed tomorrow and he can get up and get moving. He has pain and shortness of breath with the least bit of exertion at this point. Pelham’s strong faith in God and the support and friendship he has with all of you will comfort him and see him through. Keep those prayers coming and Thank you from the bottom of our hearts.

Claire

Post surgery August 15, 2007

August 15, 2007

August 15, 2007

Pelham got out of sugery yesterday about 1730 and went to the Intensive Care Unit, he had a bad first few hours post surgery, but once the pain med was increased, it was tolerable. Depending on how he progresses today, they may move him to a step down unit for further obseration. He sends all his love and wants to thank each and every one of you. Thank you all for your prayers and concerns through our journey. God Bless You

Claire

Surgery Date & Time

August 13, 2007

Hey Folks,

I will be having my surgery on Tuesday,August 14, 2007 at AnMed Main Hospital in Anderson at 1230hrs. I will be admitted at 1030hrs. The surgery is to be around two hours long, I will either go to intensive care or a regular room. Thank you for your concerns, thoughts and most of all your prayers for my family and myself.

God Bless You,

Lightning